The National MPS Society invites you to attend its 4th
conference for adults with MPS and related diseases, “Finding our
We hope everyone can attend the family conference, as well as the SPIRIT conference. The family conference starts on Thursday evening and will feature a fun social gathering for SPIRIT conference attendees. Sessions will continue on Friday. The Columbus MPS 5K and more educational sessions will be held on Saturday, in addition to an awards banquet Saturday evening.
A brief questionnaire will be sent to all conference registrants to help conference facilitators (your peers) plan the day. What are your concerns—employment, friends, personal care, medical insurance, having fun? Because this is an interactive conference, the specific agenda will not be determined until we hear from you.
Funding is available for registrants and,
if necessary, for a caregiver to travel with them and provide assistance with
travel. The caregiver is welcome to join the group during the gathering on
Thursday evening. The session on Saturday is open only to meeting registrants
to allow for privacy and confidentiality during the discussions. Registration is through the Registration Page- your SPIRIT funding requests will be part of the registration process.
At this time, all attendees will receive travel and hotel assistance.
Criteria for applying:
• Individual with MPS or related disease
• Member in good standing of the National MPS Society or parent is member in good standing of the National MPS Society
•
• Age 18 or older
Registration package includes:
• Travel to the conference (airfare or
mileage reimbursement) for registrant and caregiver (if required), maximum $500
per person. Registrant is responsible for making all travel arrangements.
• One night at Hilton Columbus Downtown
(one standard guest room and tax). Guest is responsible for any incidental room
charges such as phone calls, movies or room service. (Three complimentary
nights are available if the applicant registers for the family conference.)
Registrants are encouraged to register for the 30th Annual National MPS Society Family Conference which begins Thursday evening, Aug. 4. There is no registration fee for adults with MPS and related diseases to attend the family conference.
If you do not plan to attend the family conference, you must pay a $50 deposit upon registration to hold your space. Please contact Laurie at 207.843.7040 if you wish to only attend the SPIRIT conference. This deposit will be refunded to those individuals who attend the conference. Registrants are responsible for making all travel arrangements including hotel reservation, airfare and ground transportation. Complimentary childcare will be provided during the educational sessions.
Due to limited funding, registrations will be accepted on a first-come, first-served basis. We encourage you to register early. Upon acceptance of your registration, you will be instructed to book your hotel room and arrange your transportation to the hotel. The cost of your hotel room and the tax will be paid by the Society. Travel reimbursement is provided at the conference, although the registrant can request partial reimbursement prior to the conference.
Call Laurie Turner at 207.843.7040 with questions or send an e-mail to laurie@mpssociety.org.
We encourage you to book your hotel
reservation early, as our room block may sell out before the deadline.
Conference registration materials must be completed online no later than July
6, 2016.
THURSDAY, AUG. 4
FRIDAY, AUG. 5
SATURDAY, AUG. 6
