PROGRAMME

12/05/2011
10:00 - 17:00	Online Patient Communities Workshop [More Info]
11:30 - 17:00	Zeldzaam, maar even veel recht op zorg
10:00 - 12:00	PlayDecide session for Dutch Patient Organisations
13:00 - 15:00	PlayDecide sessions [More Info]
15:00 - 17:00	PlayDecide sessions [More Info]
10:30 - 17:00	Workshop of the Council of National Rare Disease Alliances (CNA) (ON INVITATION ONLY) [More Info]
13/05/2011
09:00 - 13:00	EURORDIS General Assembly (EURORDIS MEMBERS ONLY) [More Info]
13:00 - 14:00	Lunch for EURORDIS MEMBERS ONLY
14:00 - 14:15	Welcome Speech [More Info]
14:00 - 14:15	Opening Speech [More Info]
14:15 - 14:45	EURORDIS' recommendations for National Plans [More Info]
14:45 - 15:15	Europlan: main outcomes and future directions [More Info]
15:15 - 15:30	Outcomes of 15 National Conferences [More Info]
15:30 - 16:00	The patient's experience in the development and implementation of National Plans [More Info]
16:00 - 16:30	Coffee break
16:30 - 18:00	Roundtable Debate: National Plans [More Info]
20:00 - 22:30	Welcome Dinner [More Info]
14/05/2011
09:00 - 10:45	FULL DAY Newborn Screening Workshop [More Info]
09:00 - 10:45	Centres of Expertise & Networks of Experts Workshop [More Info]
09:00 - 10:45	Registries Workshop [More Info]
09:00 - 10:45	Research Workshop [More Info]
09:00 - 10:45	Brainstorming & Policy Development Session: Social aspects [More Info]
10:45 - 11:15	Coffee Break
11:15 - 12:30	Morning capacity-building sessions continued
12:30 - 14:00	Lunch
14:00 - 17:30	FULL DAY Newborn Screening Workshop (YOU MUST CHECK THIS BOX IF SELECTED FOR THE MORNING SESSION) [More Info]
14:00 - 17:30	Centres of Expertise & Networks of Experts Workshop (repeat of morning session) [More Info]
14:00 - 17:30	Registries Workshop (repeat of morning session) [More Info]
14:00 - 17:30	Brainstorming & Policy Development Session: Training, information and education of MDs [More Info]
14:00 - 17:30	Brainstorming & Policy Development Session: Prevention [More Info]
17:30 - 19:00	Farewell Cocktail [More Info]
15/05/2011
10:00 - 11:30	Canal boat trip (optional) [More Info]