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I have / am a caregiver for someone with an IRD that is not LCA. Should I still attend?
Yes, please do join us! We’ve had families with other IRDs attend in the past and welcome all persons that can benefit from the learning and connections. All of the sessions have content relevant to anyone with an IRD who is interested in learning more about clinical trials, research approaches, and meeting other parents, children and adults living with retinal disease

How can I contact the organizer with any questions?
Send any questions to: info@sofiaseeshope.org or call 860-556-3119.  (Please be patient, we have no full time staff!)

What does the conference cost?
Regular tickets (ages 16 and older)
$99 ticket 

Children (ages 6 to 15)
$60 ticket 
Kids 0 to 5 are free

Family Ticket
Register the entire family for one price! Includes up to 5 persons ages 6 to adult. (Children 5 and younger are free)

What does the conference fee include?
Conference attendee ticket includes:

  • Friday night welcome reception/dinner
  • Saturday conference sessions and exhibitors
  • Friday night dinner, and Saturday breakfast, lunch and dinner
  • Field trip for children ages 3+ to 15 during conference sessions on Saturday (optional). Children ages 3-6
    should be accompanied by an adult
  • There is no conference fee for children ages 0 to 5.


Are children welcome at the event?

Yes! This is a family conference and we hope you will bring your family.

For children under 6, when you register, please indicate if you need assistance, so we can follow up to make arrangements for childcare with you.  Note that our ability to support childcare on site does depend upon how many requests we receive, and the sooner we know if service is needed, the better we can help.

For children ages 3+ to 15, we've got a field trip to LEGOLAND® Discovery Center! This field trip and boxed lunch are included in conference fees. This amazing place offers an indoor LEGO® world of creativity, color and building fun! The group will be escorted by Sofia Sees Hope volunteers. We very much welcome parents or other adult caregivers from your group as volunteers - let us know if you would like to help out!   Learn more about LEGOLAND here.

What's the refund policy?

Full refund on conference fees with a 7-day advance notice.  Hotel refunds are subject to hotel rules and regulations.