| 08/03/2017 | |||
| 8:00 am - 2:00 pm | Board of Directors Meeting | ||
| 3:30 pm - 6:30 pm | Minneapolis 5K Run Registration/Package Pickup | ||
| 3:30 pm - 7:00 pm | Registration | ||
| 3:45 pm - 5:00 pm | Camp Courage Open | ||
| 4:00 pm - 5:00 pm | Adults with MPS and ML Meet and Greet | ||
| 4:00 pm - 5:00 pm | CYCLE Connection Time- Bereaved Families Meet and Greet | ||
| 4:00 pm - 5:00 pm | Newly Diagnosed Families and Patients Kimberly Bennett, PhD Joseph Muenzer, MD, PhD | ||
| 4:00 pm - 5:00 pm | Sibling Meet and Greet | ||
| 5:00 pm - 6:30 pm | Welcome Dinner | ||
| 6:15 pm - 9:30 pm | Camp Courage Open | ||
| 6:30 pm - 7:30 pm | Industry Updates | ||
| 7:30 pm - 9:30 pm | All Syndrome Breakouts | ||
| 9:45 pm | Camp Courage Closes | ||
| 08/04/2017 | |||
| 6:00 am - 7:00 am | Gentle Yoga | ||
| 7:00 am - 8:00 am | Breakfast Buffet | ||
| 8:15 am - 12:00 pm | Camp Courage Open | ||
| 8:30 am - 8:45 am | Welcome - Opening Announcements | ||
| 8:45 am - 9:30 am | Gene Therapy Overview Chet Whitley, PhD, MD | ||
| 9:30 am - 10:15 am | Emerging Therapies Joseph Muenzer, MD, PhD | ||
| 10:15 am - 10:45 am | Research Updates Patti Dickson, MD | ||
| 10:45 am - 11:00 am | Advocacy Workshop Stephanie Bozarth, MSW, Chairman of the Board | ||
| 11:00 am - 11:30 am | Adults with MPS/ML Panel | ||
| 11:30 am - 12:00 pm | Siblings Panel | ||
| 12:00 pm - 1:00 pm | Camp Courage Closes | ||
| 12:00 pm - 1:00 pm | Lunch | ||
| 12:00 pm - 2:00 pm | Minneapolis 5K Run Registration/Package Pickup | ||
| 1:00 pm - 1:30 pm | Global Review of Cardiac Findings in MPS and ML Elizabeth Braunlin, MD | ||
| 1:00 pm - 5:00 pm | Camp Courage Open | ||
| 1:30 pm - 2:30 pm | Scientific Panel Patti Dickson, MD Joseph Muenzer, MD, PhD Chet Whitley, PhD, MD | ||
| 2:30 pm - 2:45 pm | Fundraising Jim Yard, Board of Directors, Fundraising Chair | ||
| 2:45 pm - 3:30 pm | Navigating Medicaid & SSI Thomas Wier | ||
| 3:30 pm - 4:00 pm | Annual General Membership Meeting | ||
| 4:00 pm - 4:30 pm | Orthopedic Issues Klane White, MD, MSc | ||
| 4:35 pm - 4:50 pm | Remembrance Ceremony | ||
| 5:05 pm | Camp Courage Closes | ||
| 08/05/2017 | |||
| 6:45 am - 7:00 am | 5K Run - Volunteer Greet and Instruction at U of M Campus | ||
| 7:00 am - 7:30 am | 5K Run - First Aid/Nurse Station Set-Up - U of M Campus | ||
| 7:00 am - 8:30 am | Breakfast Grab n' Go - Buses begin departure to 5K | ||
| 7:30 am - 8:55 am | Minneapolis 5K Run Day of Registration Begins | ||
| 8:55 am - 9:00 am | Moment of Silence Before Race Begins | ||
| 9:00 am - 10:30 am | 5K Timed Run/Walk and 1 Mile Fun Walk Begins | ||
| 10:30 am - 11:00 am | Awards Presented /Thank You to Sponsors | ||
| 11:00 am - 12:30 pm | Family Fun Lunch, Entertainment - U of M Campus | ||
| 12:15 pm - 1:00 pm | Buses Depart and Arrive at Hotel | ||
| 12:30 pm - 1:00 pm | (Volunteer) 5K Run Clean Up / Event Conclusion | ||
| 1:15 pm - 5:00 pm | Camp Courage Open | ||
| 1:30 pm - 2:15 pm | Charitable Gifting Strategies Jerry Todd, MBA, AIF Terri Klein, Development Director | ||
| 1:30 pm - 2:15 pm | Current Practices and the Future of Hematopoietic Stem Cell Transplantation Paul Orchard, MD | ||
| 1:30 pm - 2:15 pm | Habits of Emotionally Resilient People Kimberly Bennett, PhD | ||
| 1:30 pm - 2:15 pm | The Pediatric to Adult Transition Amy Schadewald, LICSW, ACM | ||
| 1:30 pm - 2:15 pm | Young Sibling Workshop (Ages 7-11) | ||
| 2:15 pm - 3:00 pm | Habits of Emotionally Resilient People Kimberly Bennett, PhD | ||
| 2:15 pm - 3:00 pm | Manage Your Estate Distributions- Wills,Trusts, and Estate Planning Jerry Todd, MBA, AIF | ||
| 2:15 pm - 3:00 pm | Natural History and Treatment Studies in Feline Mucolipidosis Model Allison Bradbury, PhD | ||
| 2:15 pm - 3:00 pm | The Pediatric to Adult Transition Amy Schadewald, LICSW, ACM | ||
| 3:00 pm - 5:00 pm | Targeted Breakouts: Mothers, Fathers, Adults with MPS and ML, Older Siblings, Extended Relatives, and Bereaved Families Breakout | ||
| 5:15 pm | Camp Courage Closes | ||
| 6:30 pm - 8:30 pm | Banquet | ||
| 8:30 pm - 10:30 pm | Respite Night | ||
