The National MPS Society invites you to attend its 33rd Annual Family Conference and celebrate the Society’s 45 years of achievements. The conference will be held at Hilton Orlando Lake Buena Vista in Lake Buena Vista, FL, Disney Springs™ area. The meeting begins Thursday afternoon with sessions, followed by dinner and breakout sessions. Newly diagnosed families will join together Thursday evening with Dr. Joseph Muenzer and Dr. Kimberly Bennett to hear disease overviews, and share their experiences and strategies for coping.
Our
members have shared that research, management of symptoms, and new
treatments are most important. Speakers on Thursday and Friday will
focus on these topics, with additional material covered in concurrent sessions on Friday afternoon. Syndrome-specific breakout sessions will take place Thursday night. On
Friday evening, families are invited to a banquet to celebrate the 45th
anniversary of the National MPS Society! There’s no dress code for this
event; you’re welcome to dress up in your finest party attire or be
relaxed in shorts and flip flops.
Since Disney conferences occur only once every five years, you really must bring your family! To help you with this, there is no registration fee for individuals with MPS or ML, and complimentary childcare will be provided Thursday and Friday for the educational and breakout sessions. In addition to the many activities available at Walt Disney World, the Lake Buena Vista area is home to many theme parks and attractions such as Disney Springs, Busch Gardens of Tampa, Cypress Gardens, Universal Studios, and Sea World.
Don’t miss out on making your own magical moments
at Walt Disney World and helping us celebrate our 45 years of
achievements! Please join us by attending the annual meeting of the
National MPS Society to learn about the activities of the Society. Call Leslie Urdaneta at 919.806.0101 with questions or send an e-mail to leslie@mpssociety.org.
Hotel and conference reservation deadlines are November 26. But remember, the room block may fill up beforehand, so register early!