PHinding Your Hope: PHA’s 2018 International PH Conference and Scientific Sessions

You are invited to attend the largest international gathering of pulmonary hypertension (PH) community members in the world. PHA’s 2018 International PH Conference and Scientific Sessions will bring together more than 1,500 people with PH (both newly-diagnosed and long-term survivors), families, caregivers, PH-treating health care professionals and researchers.

Friday 06/29/2018 - Sunday 07/01/2018

Renaissance Orlando at SeaWorld

6677 Sea Harbor Drive

Orlando, Florida 32821

United States

General Information and Registration

Americans with Disabilities Act Compliant Hotel Rooms

The Renaissance Orlando has a limited number of Americans with Disabilities Act (ADA) compliant hotel rooms. As you can imagine, the need for ADA compliant rooms will be high and they will be distributed on a first come, first served basis. The hotel will make every attempt to have patients on lower floors, and as close to elevators as possible.

Refrigerators and Oxygen at Conference

If you require a refrigerator in your hotel room, it is your responsibility to request it when making your hotel reservation. Only a limited number of refrigerators are available. If you call the hotel to request a refrigerator, please remind the hotel that your request is related to medical needs.

If you require oxygen, please make arrangements with a provider prior to your arrival in Orlando for your time at Conference. Although neither PHA, nor the hotel will be able to assist you in this area, the hotel can receive your pre-ordered oxygen supplies and deliver them to your room upon check in.

Wheelchair Transportation Assistance During Conference Sessions

PHA recognizes that the Renaissance Orlando at SeaWorld is a large property, and a lot of walking will be necessary. A limited number of volunteers will be available to transport attendees by PHA provided wheelchairs on site. This service will be utilized for assistance to/from sessions only and these wheelchairs will not be for rent, nor will they be available for transport other than to/from sessions.

Wheelchair and Scooter Rental Information

If you will need to rent a wheelchair or scooter for the duration of conference, please see the links below for rental information.

Wheelchair and Scooter Rental Companies (that deliver to Renaissance Orlando at SeaWorld):

Patient Rest Stop

The Patient Rest Stop is a quiet room for patients who would like to take a break, require a cold ice pack or distilled water (PHA will provide ice packs and distilled water) and store their extra oxygen (please note that leaving personal items, including oxygen, in the Patient Rest Stop will be at your own risk. PHA will not provide security or lockers for personal items). The Patient Rest Stop will be accessible to patients beginning Wednesday, June 27, at 5:00 pm. until Sunday, July 1, at 9:00 p.m.

Kids’ Rooms and Teen Room

Ages 3-8 Anemone (2nd floor)

Ages 9-12 Damselfish (2nd floor)

Ages 13-17 Fantail (2nd floor)

The Kids’ Room will focus on providing an engaging and entertaining experience for all age ranges through fun interactive activities. Stop by the Kids’ Room for the full Kids’ Room schedule.

The Kids’ Rooms will be open Friday through Sunday during Conference, for children ages 3-17 (no diapers please). Children must be picked up by their parents for all meals. There is no charge for children’s activities, but Conference registration and Kids’ Room reservations for each child using the Kids’ Room are required. Registration is required to participate in the field trip.

The Kids’ Room is managed by Accent (www.accentoca.com).

Friday, June 29, 2018

• 12:30 – 7 p.m. Kids’ Room Open (closed 7 – 8 p.m.)

• 2:30 – 3:30 p.m. Kids’ Room Support Groups

Saturday, June 30, 2018

• 8:45 a.m. to 12:30 p.m. Kids’ Room Open (closed 12:30 – 1:30 p.m.)

• 9 a.m. to 2 p.m. Field Trip to the Orlando Science Center

Children must be preregistered for the field trip. Only Accent on Children's Arrangements and children 5-17 are permitted to attend the field trip. Nannies, au pairs, parents or grandparents are not permitted to attend due to liability issues.

Please check children in at the kids room prior to 8:45 am. The buses will depart promptly at 8:45 am. Attendees will return by 3 p.m.

• 1:30 – 6:15 p.m. Kids’ Room Open

• 7 – 9:15 p.m. Kids’ Night at the Movies, Grouper (2nd floor)

Sunday, July 1, 2018

7:45 – 11 a.m. Kids’ Room Open

• 8 – 9 a.m. Educational Session

Research Room

Patient participation is vital to PH research. Every PHA International PH Conference includes a Research Room dedicated to helping researchers further their studies by making possible the collection of data from the largest gathering of PH patients in the world. Consider participating in studies currently underway by donating a small blood sample or cheek swab and/or filling out a questionnaire. A few minutes of your time could help make a real difference!

Cancellation Policy

In the event you register and can no longer attend PHA’s Conference, please contact PHA at 301-565-3004 x811 to cancel your registration. Cancellations received on or before April 30, 2018 will be granted a full refund of the registration fee. Cancellations received between May 1 and May 31, 2018 will be refunded half of their registration fee. Cancellations received after May 31 and "no shows” are not eligible for refunds due to the contracted financial obligation assumed by the Pulmonary Hypertension Association with the Renaissance Orlando at SeaWorld. If you cancel your registration, you are responsible to contact the hotel to cancel your hotel room reservation.