31st Annual Family Conference

   The National MPS Society invites you to attend the 31st Annual Family Conference in Minneapolis, MN. The meeting begins Thursday evening with dinner and syndrome breakout sessions. Newly diagnosed families will join together Thursday evening with Joseph Muenzer, MD, PhD and Kimberly Bennett, PhD, to hear disease overviews and share their experiences and strategies for coping.

A special invitation is extended for your family to attend the conference.
As always, there is no registration fee for individuals with MPS and ML, and complimentary child care will be provided. This year, we are very excited to announce that we will be providing one complimentary night at
Hilton  Minneapolis for each family attending.

**See the Hotel tab for more information
and restrictions. 


      Each year, we continue to encounter exciting research and scientific advancements that provide hope for our families and affected individuals. This year is no exception, and we are committed to providing you with up-to-date information. The conference will provide access to cutting-edge research and treatments, and representatives from pharmaceutical companies working on treatments will be available throughout the conference. Be sure to take advantage of this opportunity and speak directly with them about new treatments or possible clinical trials.

   We take our members' feedback seriously and have included sessions this year based upon your requests. Come check out how to navigate Medicaid and SSI or learn more about medical trusts. Need a better understanding of HSCT? We've got you covered!

   On Saturday morning, join the National MPS Society for the Minneapolis Madness for MPS 5K Run and 1 Mile Memorial Walk at University of Minnesota. The event will include a grab n' go breakfast, chip timed 5K, awards, run across the Mississippi River and lunch. Buses will be provided for transportation to and from the Hilton in downtown Minneapolis. Early bird registration specials are available. Families have the opportunity to build an easy website and raise funds as a team! To register, follow the 5K Run/Walk tab at the top.

Hotel and conference reservation deadlines are June 29th, 2017.